Young Onset Dementia Service


Young Onset Dementia Service

This  is a brief introduction to early or young-onset dementia, and the help available to anyone who might be worried about themselves or anybody else.

What is dementia?

The word 'dementia' describes a number of symptoms that occur through a disease of the brain or other conditions such as brain injury.  The symptoms include memory loss, confusion, mood changes and difficulty with day to day tasks such as preparing meals and getting dressed.  There are many types of dementia.  Alzheimer's disease is the most common.

Victoria Park new gardens

The newly-developed sensory garden at Victoria Park 


What is early-onset dementia?

Dementia is more common in older people. The older you are the more likely you are to develop dementia.  However, dementia also affects younger people in their 40s, 50s and 60s, with around 5% of people with Alzheimer's being under 65.  If you are under 65 and diagnosed with dementia, it may be described as early or young onset dementia.

Alzheimer's disease is still the most common form of dementia in younger people, but there are other causes such as head injury, alcohol abuse or problems with the blood supply to the brain (vascular dementia).  Fronto-temporal dementia is also more common in younger people and affects more men than women.


What are the symptoms?

Behaviour may change very gradually and a person may appear less confident. They may seem depressed or disinterested in the things they previously cared about.  Some people have difficulty with language. They may know what they want to say but have difficulty expressing it (aphasia). Others have difficulty finding the right words and may use the wrong words.

Memory problems will affect daily life.  Conversations may be repeated because they have forgotten earlier recent events or conversations. People may become confused and disorientated and lose a sense of place and time, for example being unable to find their way home whilst out in the car or forgetting where they are going and why.  This is especially likely in new and unfamiliar situations.

People can have difficulty reading and recognising objects as well as judging speed and distance.  When visual problems are a major feature this is known as 'posterior cortical atrophy.'


Help and support that is available

In Manchester a Young Onset Dementia Service was established in 1996 and was one of the first dedicated services in the country.  Anyone who lives in Manchester and has been diagnosed with dementia before the age of 65 is eligible to receive support from the service. It is a day service that is specifically for younger people, since we recognise that dementia in younger people can have a significant impact on individuals who are often still working or who may still have young children and that other services targeted towards an older age group may not meet their specific needs.

The service aims to restore confidence and self-esteem and to enable people to live with dementia in the best way possible.  You will be given the opportunity to meet other younger people in similar situations at a day service in Central Manchester.  The service is staffed by nurses, a social worker and support workers.  Lunch is provided and depending on your circumstances we may be able to assist with transport. The length of time you will attend depends very much on your level of need, but we will ensure that when you are discharged from the service that you continue to get the support you need.

Alternatively, time-limited support may be given at home by a specialist nurse and support worker.  You will have a key worker (known as a care co-ordinator) and you will receive practical help and advice on a range of issues, such as health advice, benefits advice, planning for the future and assistance with care packages.  Your family will also receive support should they need it.    We work closely with a range of other professionals and will ensure that you get the help that you need.

 The Trust also has a team of Admiral Nurses who supports carers of people with dementia.  We work closely with the Admiral Nurses and wil l put you in touch with them if you need help.  We also have links with other services who can support with befriending and welfare advice.


What to do if you are worried

In younger people, the symptoms of dementia can be mistaken for other health issues such as stress, anxiety, the menopause or depression.  If you are worried, you can visit your GP and request referral to a memory treatment clinic.  This specialist service will carry out a range of tests to explore the cause of your symptoms. Once a diagnosis of dementia has been made a referral can be made to the Young Onset Dementia Service. Those people with a diagnosis of early-onset Alzheimer's may be treated with medications that can relieve some of the symptoms.  Other people may be supported with non-drug treatments.


Location and contact details.

Team Manager

Young Onset Dementia Service

70 Daisy Bank Road

Victoria Park

Manchester M14 5QN

Telephone: 0161 882 2171 

Opening hours: The service operates during office hours from Monday to Friday excluding bank holidays.

An answer phone is in operation when the office is closed.

Age of Service User: 18 - 65 years old

The Trust's Young Onset Dementia Service was featured in Young Dementia UK's website in 2014:

News:  click here for news on projects in the Young Onset Dementia Service 

Click on the screenshot below to view a service user having his home developed for a dementia environment at home project:

Young onset dementia social care tv

Contact details

Telephone: 07436034780


Young Onset Dementia Service
70 Daisy Bank Road
M14 5QN

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Opening hours:

The service operates during office hours from Monday to Friday excluding bank holidays.

An answer phone is in operation when the office is closed.